The meeting with my supervisor yesterday, went as well as I had expected it to go...Frustrating as HELL!
The gist of our conversation is as follows; she doesn't understand how having someone I know accompany me to work, or me moving out would help my situation. It wouldn't make it any safer because I'd spasm no matter who I'm with.
"This isn't a staffing issue, Andre," she said, "...We are sending staff with you..."
I acknowledged her points, then I added that I wouldn't have worry about trying to direct someone, and be understood mid spasm if the attendant already knew me and what to do. My supervisor replied to this by suggesting that I take the bus, (MobilityPlus,) if I'm worried about spasming, so I reminded her that I already do.
I went on to say that what happened on Friday, isn't the sole incident behind my desire to move out, it was the last straw - my tipping point. However, a lot more was said yesterday, but I'm getting really anxious again writing just this much, so, long story, short, my supervisor is going to put me back on the waitlist for outreach, (in-house care,) as well as the waitlist for Kiwanis, which is in my hometown. This means that I'll be here for awhile yet, unfortunately, and even though I like living on my own, and having my own place, all this ILC crap is extremely taxing.
God, I hate confrontations, but I am going to fight this, and maybe even get a lawyer.
In a previous post, I mentioned "a few" of the issues that I've been having with ILC, and that I let a heck of a lot slide. I also mentioned how it's a struggle to get an attendant to accompany me to work and book events. Well, listen to this.
I was invited to a day camp to speak to 6-11 year olds about real life superheroes, and the talk itself went really well. However, I wasn't allowed to take any of the Mooregate staff, (the PSWs I see everyday,) so, I went out with someone who didn't know or understand me well so I was practically on my own, and spasmed and almost drove off the curb twice! Next month, I work at Extend-A-Family, and ILC is trying to make get there and back totally on my own, and only have an attendant for the first and last 15 minutes just to set me up, and then get me ready to go back to my apartment.
This is the last straw! I'm not going to jeopardize my safety for anything, hell no! I'm done, and I have a meeting with my supervisor to tell her as much!
Computer: …and I am Ryan, Andre’s trusty and hardworking sidekick… “his computer”…and this other fine “human” “…person” “being…” is Andre’s assistant.
How are you all doing today?
“Cool, well, Andre is 24 years old, he has a disability called Cerebral Palsy, and he talks differently which is why he takes me out places.
”I like to think that we’re sorta like Batman and Robin, which brings me to why we’re here, Andre and I made a comic book about a normal guy named Cal, who has a disability, and eventually discovers that he also has superpowers.
We are here today to talk with you about real life superheroes.
”Can anyone give us an example of a real life hero and/or heroine, and what makes them one?”Anyone can be a hero or heroine, and Andre and I both agree on this, because it’s not who you are, or having a “special” ability that makes you a hero, it’s what you do…Just imagine I had hands, and was able to put air quotes around the word “special,” alright? “
…No, wait, scratch that...” “Don’t imagine me with hands, that’s just silly! Who has ever heard of a computer with hands?!”
…Anyway, back to what I was saying, Bruce Wayne didn’t become Batman because he had rich parents, he became Batman to…
”Does anyone know why Bruce turned himself into the well-known hero?”
Due to the way his parents were killed, Wayne dedicated his life to fighting crime, so no one else would have to lose their mum and dad in the way that he lost his. He wasn’t born with superpowers, or special abilities, but that didn’t stop him from putting away bad guys, and it hasn’t yet.
“Similarly, Peter Quill, (or “Star-Lord” as he likes to be
called,) from the Guardians of the Galaxy is “only” human, and doesn’t have special
powers. Air quotes around “only.” However, he doesn’t give up, and when life
throws him a curve ball, he just rolls with it, and continues on.”
“So, if you were to ask Andre and I for our definition of a hero, we’d say that there are several different types of heroes, and many of them go unnoticed, and don’t wear flashy costumes. They are everyday people like Andre and all you, who stands up for the underdog, and doesn’t give up even through the toughest times.
”Before Andre and I go, we would like to leave you with a quote from one of the best Batman movies ever made.“A hero can be anyone. Even a man doing something as simple and reassuring as putting a coat around a young boy's shoulders to let him know that the world hadn't ended.” – Batman, The Dark Knight Rises.
We would also like to offer you the time to ask Andre questions, and if you don’t understand him please don’t be afraid to ask him to repeat himself.“By everyone! I shall leave you in Andre’s capable hands, “‘cause just between you and I, he feels a little left out when I do all the talking.”
Me: Thanks Ryan!
Computer: …No problem, buddy. Just trying to keep it real!